Look at me go...i am a blogging machine tonight! I wanted to let everyone know how well Ava is doing, and how thankful we are for everyone's prayers and fasting. So she is now at 4lbs 4 oz, and is eating 70% of her food orally. The fortifier that we add to the breastmilk in order to bulk up her calories was changed, and I guess it tasted pretty nasty, cause she refused to eat it. She needed the nasty stuff though, cause it really helped her diarrhea situation, and consequently her sore bum rash situation. But she is now changed back to a more palatable fortifier, and is doing great.
The doctors even started talking today about our plan to go home...it is really coming. I am guessing it will be within the week.
Also, the geneticist spoke to us today, and, as we expected, he is having a difficult time diagnosing her. The best indicators for syndromes become more apparent as children develop, so really this will be a discovery process, and we probably will not have answers for months or even years. But she will have another eye exam and a hearing exam very soon, so that will be helpful to us as we prepare for life at home. You can see her little eye open in the pictures, and she is doing a lot better trying to open the other eye. She really is looking great, and is becoming more and more alert and active. She makes me laugh all the time, and has such a big personality for such a little girl.
She is also acquiring quite the fan club--nurses come all the time just to say hello and to check up on her, even when they arent working! it is so cute to see...I bet they have parties at night, cause sometimes she is so tired and dirty, I cant imagine what she has been doing! but I am glad that she is having more of a social life than I am!